PKD walk

So it seems it's time for a PKD update!!

Connor AND Vale both have appointments with the pediatric neuphrologist in mid November, Vale to see if he has PKD and Connor to see if/how much cyst growth there has been on his kidneys.  There is supposedly a 50/50 chance of passing it down so theoretically Vale's chances are good... but, it's VERY dominant in Jimmy's family so I'm not crossing my fingers... God's in control! :)

We try to keep the little guy out of the womb hydrated and away from caffeine.  So far, no UTI's and he's been generally healthy despite all of our traveling which is a blessing!

When thinking about things I can do to help my husband and son (and father-in-law) I did a lot of reasearch hoping to find some sort of cure/treatment just looming on the brink of release waiting for FDA approval.  No such luck.  The best things I've heard are drink tons of water (which is good for everyone but vital for PKD) and a Japanese breakthrough where patients avoid dialysis by eating 10 pieces of charcoal before every meal... yeah... yuck.  WE NEED MORE RESEARCH!  But for research you need funding... and with our economy the way it is that's only getting cut. 

All that to say... I have been roped into not only participating in but also helping to PLAN the L.A. PKD Walk this year to raise money for research and a cure.  LOTS and LOTS of work to be done but I am exciting to be helping and look at it as a ministry opportunity as well!

So, I need you guys to donate.  I'm not going to beat around the bush and make cutsie little excuses.  The walk is to raise money and I really do want to raise money for a cure.  I'm not embarrassed asking for money because it's not for me and without progression in the science there is a real chance of me losing my husband and son much earlier than could be.  I need them and will do everything I can to keep them around.

So if you guys live in the L.A. area, we'd LOVE to have you come up and be on the Mahon Brood Walking Team!!!  You could maybe even raise some money for us!!  That'd be fantastic!  If not just come support us.  If you don't live in the L.A. area you can donate on line and get your friends, co-works, bosses, doctors, neighbors anyone you can think of to donate for PKD research.  There are a lot more people with PKD than you realize and I'm so surprised at how often someone tells me they are related to or know someone with PKD.  There are 12.5 million people worldwide with PKD.  That's a lot!

So we are walking in the walk for PKD on October 22nd and would love to raise as much money as we can before then.

You can go either to my donation page or Connor's page to donate.  You can send me a check or you can go online and use a card.  Thanks in advance for your efforts!

My page: http://www.pkdcure.org/mahonbrood 

Connor's page: http://www.pkdcure.org/ConnorMahon

I would just like to say a special and wonderful thank you to my friend Autumn who donated even before I asked for any money!  She went and FOUND our pages and made a donation.  You are a rock star and a wonderful friend!  I don't deserve you... :)